Friday, October 26, 2012

pictures!!!

So, Jack over at Reflections Digital Photography took pictures for us on Sunday at A Day of Remembering. It was such a beautiful day. I'm just going to give you some sneak previews... he should have the pictures up sometime this weekend if you want to look at them. He does great work! And I'm not just saying that because he's a family friend!! :) Take a look for yourself by clicking the linky up above!







hope your weekend is filled with love and blessings!



Monday, October 22, 2012

a day of remembering

This past Sunday was A Day of Remembering. A sort of spin off of A Walk to Remember. Basically we didn't have the funds to do an entire walk so instead we gathered and remembered our babies, released balloons and spent time with others who 'get' it.

It was a beautiful day, the sun shined for most of the day, it was windy, but I think that is what you get for a 78 degree day towards the end of October.

I said another speech this year and woohoo for me, I got through most of it without crying!! I rock.. i know... ehem moving on... I'll go ahead and post my speech, because I think it's important for others to know that moving forward is possible... moving forward with the heartache and pain to find who we were meant to be.

Loss


One of the dictionaries definitions of loss is: the state of being deprived of or of being without something that one has had. It is such a matter of fact statement. You had it, now you don’t. As we gather today once more to remember our loss, we all unite under this one word. LOSS. The loss of our child, grandchild, brother, sister, niece, nephew, etc can be vastly different, but the one thing that remains the same is that we are all suffering heart break because that child isn’t here with us. We don’t get to see them every day; we don’t get to hug them. We don’t get to celebrate milestones and this loss doesn’t go away, we learn to cope. We learn to live with this loss.

It’s amazing how this one word can envelope so many emotions. It’s amazing how the word loss has a different meaning now that this word is part of who you are. It’s amazing how this word can change every single thing about who you thought you were, who you thought you’d be. LIFE CHANGING.

Something that I’ve learned over the past two years is that the grief of losing a child comes in waves. Initially you are grieving your child, the physical and painful loss of that child. Going through the motions of memorializing your child, whether that be by a funeral, memorial service, creating keepsakes however that happened that helped to solidify the loss. Then you go home, the home that was prepared for the upcoming arrival. The memories of preparing a room, registering at a store for your baby shower, even the bathroom that you took your pregnancy test in filled with hope and excitement; those are things that you grieve too. Only then, you are grieving the HOPE you had for your baby. Then you go a couple months down the road and you begin to think about the exciting things that should be happening with your 3 month old, then with your 6 month old, then with your 9 month old and then a new grief begins. A grief that happens almost daily, never letting up and reminding you that someone is missing. Every “should have been” milestone hurts in a place that you didn’t know could hurt.

But then, somewhere in this hurt comes strength. A strength that you didn’t know you had. A strength that helps you look at your situation and know that you must keep living life. A strength that helps you put one foot in front of another and begin to enjoy things again, and not feel guilty. I think that is where I am in my journey. I’m moving forward, not moving on, I couldn’t move on because that indicates that I’ve chosen to forget, Logan will never be forgotten. I am moving forward knowing that I am a better person, a stronger person. I know the direction I want to take my life, all because of a little baby boy name Logan Joseph Clear. I think this stage comes at different times for different people. Some get to this point faster than I did, some get here later, and that’s okay. Everyone grieves differently. Everyone has their own way of wading through the tears and heartache. The important thing is to find a way to move forward, with the aches, with the heartbreak, with the little reminders. They help you to find the person who you were meant to be.
(the back of Lexi's shirt - this year we got them so they could be personalized)

We are already working on next years event. We will be doing a walk, towards the middle of October. Probably at Shawnee Mission Park again... it just feels like its a place that is made for healing!
I'll also be taking donations (www.awalktoremember.bbnow.org)  throughout the year for next years event and hopefully I'll be a little closer to being a 501c3 non profit organization.
I can't say thank you enough to some very special people... and you know who you are :)
 
Much love my friends... 

Friday, September 14, 2012

a day of remembering

It's happening folks! We are going to have a balloon releasing in honor of October being pregnancy loss and awareness month. It will be on October 21st. Coco McAtee has been amazing over at Overland Park Regional in helping to get the word out... make sure you do to!
Here is the website!

http://awalktoremember.bbnow.org/

Love to all!

Thursday, September 6, 2012

guilt

I’ll be honest. Here recently I’ve felt guilty. I’ve felt that I’ve let down my little boy down. When Logan died I knew that there was a purpose. One that, possibly, I made up, to make me feel better or to make the reason he died concrete instead of he just did. Maybe it was divinely given to me. Maybe it has made me feel better that because of Logan I feel that I have a purpose; to share his story. To help others going through the same thing that we did. To make sure others knew they weren’t alone. I’ve really questioned how easily I came to the conclusion that it was ‘okay’ that Logan died because of these reasons… Is it God’s grace that I’ve allowed myself to move forward? Is it ignorance? Is it stupidity? I really don’t know. But I’m thankful.



I find myself feeling guilty for many different reasons. One is that I’m not doing the walk this year. Seriously breaks my heart, but with the cost of all of the things I just can’t afford to do it. It scares me that if I skip this year that it won’t be nearly as important to others next year. That’s something that I just have to pray about and trust that God will provide. Another reason I feel guilty is that I feel that I’m coping much better with losing Logan than Mr. Clear is. I know that everyone grieves differently in different timelines and in different ways, but I’m afraid that I need to hold myself back or I’m going to get frustrated, I just have to remember that we all deal with loss differently. Another reason I feel guilty, and this one is as backwards as can be, every time I tell my story about Logan, or offer myself to someone who has suffered a loss, every time I make known that I’ve lost a child, I feel guilty that I may be shattering the dreams of a pregnant soon to be mom. I know that when I was pregnant with Lexi there were people that had lost babies to miscarriage and I just simply didn’t want to hear it, so I ignored them. I somehow feel guilty about being so open about our loss. Backwards? I think so!



Guilt is so strange. It shows you where you are weak, it shows you where you are strong, but it’s something that we have to allow God to give us grace with as well. I am working on praying more about my guilt issues. I pray that God gives me the grace to forgive myself for feeling guilty. I pray that God will show us all the grace for feeling guilt.

Thursday, February 9, 2012

mom, Mom, MOM, MOOOOOMMMMMM

Every night on the way home that is what I hear. I get so frustrated because she obviously wants something that I can’t or won’t give her. And it often makes me wonder if I am a good mom. I know that there are areas where I am absolutely terrible, there are areas where I feel like I am fair, but there really isn’t  one thing that I can say that I am absolutely positively awesome at… and that isn’t fair to Lexi.

Johnny and I have been blessed with Alexandria, our first born, our only living child and I feel that we are doing her a huge disservice by not being the absolute best parents that we can be. It’s hard to wrap your head around the fact that our actions right now are developing who she will be when she grows up. How Johnny and I act towards each other is laying the groundwork for what she will believe is how a relationship should work. Every step we take effects her life, currently and in the future. I often wonder if God underestimated the type of parents we would be when he blessed us with Lexi.

Don’t get me wrong. Lexi is such an awesome kiddo, really she is, full of spunk and life and energy. Full of attitude and knowing what she wants and determination that when she hears no, she hears maybe (yes aunt Wendy, she’s no doubt an orange!!!). But that same spunk and attitude can wear on me like no ones business. Sometimes I just think that I won’t be able to take one more thing from her. And then she gives me a hug and tells me she loves me and the world makes sense again… until about 5 seconds later when she tells me ‘I SAID NO’ and runs off pouting…

I guess the point of this post is to say that I know I should be a better parent, I don’t want to be a parent that is just good enough. I want to be the best parent. I want to be the parent that Lexi deserves. I guess that takes time and patience and understanding and love…

Dear Lord, please help me find the patience that you have obviously instilled in me, please help me find the calmness in the midst of the attitude storms. Please help me be the parent you have visioned.

Lexi, when you get older and read this, please know that your Daddy and I have done the best we can and hopefully we get better and better by the day. We love you!

Wednesday, February 8, 2012

The past couple of months

I know that I haven’t posted since the ‘One year ago today” posts.. Those were really hard to write. Hard to go back and read, but they were truth, they were raw emotion, they were what my mind goes through on a daily basis.

I will say that life has gotten easier with time. Losing Logan is something that changed me forever. I will always think of Logan. No matter where I’m at, no matter what I’m doing, he’s always there, waiting to be mentioned. I know that it can make some people uncomfortable talking about my son that is dead, but it is so true that I think about him as much as I think about Lexi. All the time, every day. It’s not gut wrenching sadness and pain anymore.. don’t get me wrong there are totally those days that I need a good cry because I miss what should have been, I miss the fact that I should have an almost one year old. That on the 21st of this month that we should be celebrating Logan’s first year of life. But sadly that day will pass with birthday party, with no candles being blown out, with no one year old with blue frosting smeared all over his face. Maybe that happens in Heaven. Maybe on December 2nd Logan had a blow out party for being in Heaven for a year.. I’ll find out one day.

My Grandpa died last month, in January. He fell and broke his hip the weekend of Thanksgiving and went to a skilled nursing unit and developed a really bad infection and died. In my opinion he shouldn’t have died. It’s such a shame that the hospital took such poor care of him that he couldn’t live out the next 5 or so years he had left. He will be missed, he IS missed. He had a good life, a long life, saw so many things that I will never ever know about. He and my Grandma had been married for 65 years! That’s a lot of love to be together for that long. I only hope that Johnny and I can be together for that long… and not hurt each other! Smile

Johnny, Lexi and I are buying a house! Hopefully we will be closing the end of this month.. and at that time I’ll post pictures… its so exciting, but so scary at the same time.. I mean are we really grown up enough to own a home?!?!?

I promise I'll try to post more frequently!

-Heather

Sunday, December 4, 2011

A year ago today–Day Three

I woke up abruptly at 1A.M., Something was happening. Something felt different. Johnny was asleep in the chair and I called out. Johnny something's different, I need a nurse. I found the call button and Amy answered. I said, something's different, I think someone needs to come in and check me. Amy came in and said that I was fully dilated and ready to push. She said it was time to call the doctor. I asked Johnny to go get mom in the waiting room just down the hall.

There was a lot of movement in and out of the room. Mom and Johnny came in just as they wheeled in the bassinet. Another scene that is burned into my mind. A bassinet, a place where a live baby is put, typically to go back to the nursery to be with the other live babies.. I remember being so joyful when I saw Lexi in hers, but all this bassinet brought were tears and the very real reminder that Logan had already died. That they didn’t need the warming lights, they didn’t need to use the tools like they do on a live baby.

With Johnny and Mom by my side Amy left the room saying that the doctor was on her way. As soon as she left to room I looked at Johnny and knew that Logan was coming I told him to go get her, and her ran out of the room, running right back in with a team of nurses, Amy and Heather leading the way. Amy had one glove on when she delivered Logan. He blessed this earth with his presence at 1:10 AM December 2nd. He weighed 2 lbs. 6.8 ounces and was 15 inches long. Without a breath, without a cry without a congratulations, our son Logan Joseph Clear was here.

It was very apparent that something was wrong with Logan. It looked to be a chromosome defect of some sort, kind of along the lines of downs syndrome. He still looked like a baby, all his fingers and toes and ears, he even had a little dark hair, but his forehead protruded a little and his nose was a little sunken in. Something had made our precious Logan not form quite right. We opted to not to an autopsy on Logan, We didn’t want him cut on, it was something that we decided even before he was born. They could do testing on whatever else they could, but Logan was not to be touched.

One thing that I didn’t really think too much about was what would happen when Logan was delivered. How it would feel to hold him and love on him knowing that he wasn’t alive. I knew that I wanted to, Mom wanted to . Johnny opted not to and it is a decision that a person has to make on their own. The nurses were great. They cleaned him up a little and gave him to me as soon as he was born. It is a moment that I will never forget, I was so afraid to touch him, I was so afraid that I would break him, his body was already fragile and I didn’t want to make it worse.

Mom and I took turns holding him and loving on him. Talking to him and telling him how much we loved him. The nurses brought us a camera for us to take pictures of Logan. We took several and those are pictures that I will treasure my entire life. Some mothers who have stillborn children don’t get the chance to hold them and love on them and have pictures of them.

They took Logan to clean him and up get measurements. They also took foot and hand prints, they did foot imprints with his name in the plaster. When they brought him back he was dressed in a blue gown that had footballs sewn as buttons, a blue and white knit cap and a matching blanket. The dressed him as if he was a living child and that meant to world to me. We took more pictures and loved on him more. I’m not sure how long he was with us in the room, but it was an hour, maybe longer. They made sure that I knew that as long as I was in the hospital that I could see him. Just knowing that made me feel a little better about everything, he was, after all, my child.

When they finally took Logan I told him that I would see him later, fully intending to get him back before we left,, I regret it, because I never did, it was just too hard.

They transferred me to the Women's Center on a different floor so I wouldn't hear all the cheers and see all the big balloons saying CONGRATS. Once settled Johnny and I finally fell asleep for a while, curled up with each other on the bed trying to find comfort in each others arms.

I woke up again when I felt someone in my room, it was Amy and Heather, our nurses, they had brought up things for us, it was shift change and they were leaving. They had scrapbooked several things with Logan’s name on it. they brought the foot imprints, they even printed off the pictures we took of Logan and some they took and burned a c.d. for us to take home so we could have his pictures forever, something so little, but so huge for us.

Johnny woke up and we all exchanged hugs and tears and I tried to express my thanks to them. For such a horrible experience I couldn’t have asked for a pair of more caring, more compassionate nurses. What was next for the day… setting up arrangements for Logan, what to do with his body, burial or cremation? Where to have his body sent? Mom said she would call around and figure out what to do and how to do it. Johnny and I decided that we would get Logan cremated. That way if for some reason we ever moved he wouldn’t be left in a city all alone, that we could take him with us. I got up to go to the restroom and walked out of the door to see Johnny on the phone with McGilley and Frye funeral home, making arrangements for our son. I listened as he told them that our son had died, he was stillborn and we needed to make arrangements to have him cremated. It was something that Johnny felt he needed to do, he wanted to handle this part of our journey, being a husband and a dad. In that moment my admiration and respect for Johnny had never been higher,and through our journey he continues to amaze me.

The doctor came up and said that they got some really good tissues from the placenta and the umbilical chord so she was sure they could figure out what exactly happened with Logan. She also said that I looked good and I could go home whenever I wanted, that she would get the paperwork ready. I was ready to get out of the hospital, ready to not have my temperature took, not too have my stomach pushed on, ready to see my daughter… but this also meant that I would be leaving the hospital without Logan. I was leaving him there, in the morgue, in the  basement to be picked up by the funeral home. If I left it meant that I could never see him again. Everyday happy couples leave the hospital with their newborn baby, but not us, not today, we were leaving with empty arms and heavy hearts.

 

Since then Johnny, Lexi and I have been on a roller coaster of emotions.  Johnny and I have had some really rough patches in our marriage, it’s hard trying to be the support system for another person when you are using all your energy to try to get through your day. We’ve been impatient with Lexi, maybe a little too often. We’ve let friendships slip away that we shouldn’t, we’ve let people down and have been let down by others. We really have had to find a new normal. Trying to rebuild a life, a marriage a family out of the ashes of what was to be. It’s been difficult and I’m sure there are going to be times when it’s almost unbearable, but we’ve learned that Logan allowed us to see the world in a different light. We need to cherish the things that we hold most dear. We need to experience life a little more. We need to allow things to happen. We need to realize that we can do all we can and things will still turn out bad, but if we hold on tight and ride the storm we’ll get to see the rainbow after.

Thank you for reading my journey of a year ago today. I hope it has allowed you to see a little glimpse of one persons story of child loss. The emotions that happen, the events that happen. Just know that everyone has a story… it may not have been them, but maybe someone they know.. stop and listen, learn that life is a journey and you never know where they are in theirs.

With love,

H